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| Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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05-10-2013, 10:11 AM
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Junior Member
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I would love as many opinions as I can get on this.
I think my MG is mild, double vision, core weakness (cant hold myself upright), and extreme fatigue are my main issues. I am on Mestinon only and my symptoms have continued to get worse. So I know that my treatment needs to get ramped up too. Monday I see my neuro and I am going to ask for more meds. I would like Mestinon every 4-6 hours, this should adress my core weakness. And I am desperate for something for the fatigue. Any suggestions? I read on here the common treatments. Cellcept, IVIG, plasmaresis, etc..... But can anyone tell me if or what drugs and/or treatments made a difference in their fatigue? Thank you in advance for any suggestions and insights!! |
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