FAQ/Help |
Calendar |
Search |
Today's Posts |
|
Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
Reply |
|
Thread Tools | Display Modes |
06-06-2013, 03:41 AM | #11 | ||
|
|||
Member
|
Thanks so much Kathie!!!
a year and a half ago or so, before I had much of a handle on all of this, I tried a binder like thing (I was going to a wedding, and wanted to feel more confident and knew I couldn't "suck it in" all night with my weak muscles).. It seemed to work initially, but then as the night went on my muscles started tuckering out more and hurting more - as they were fighting against the thing and making them ultimately work harder (who would have thought!!!) Sometimes even having a tight bra on makes this all worse.. I have different tightness of bras for where my IVIG is/ how strong i'm feeling! I always worry i'm doing some sort of permament damage with the way this all feels!!! not to mention, it's not exactly fun! |
||
Reply With Quote |
06-06-2013, 06:35 AM | #12 | |||
|
||||
Member
|
I had the same experience with the binder. It is only good for duration of about 4 hours. Then you need to take it off and rest. I myself have been looking for a bra/torso solution that would be supportive, yet comfortable and hook in the front for similar reasons. When I find something that works, I will let you know.
kathie |
|||
Reply With Quote |
Reply |
|
|
Similar Threads | ||||
Thread | Forum | |||
RSD and abdominal surgery | Reflex Sympathetic Dystrophy (RSD and CRPS) | |||
abdominal r.s.d. | Reflex Sympathetic Dystrophy (RSD and CRPS) | |||
abdominal and pelvic RSD | Reflex Sympathetic Dystrophy (RSD and CRPS) | |||
Abdominal/pelvic RSD | Reflex Sympathetic Dystrophy (RSD and CRPS) | |||
Abdominal pain | Hydrocephalus |