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Old 06-06-2013, 03:41 AM #11
bny806 bny806 is offline
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Thanks so much Kathie!!!
a year and a half ago or so, before I had much of a handle on all of this, I tried a binder like thing (I was going to a wedding, and wanted to feel more confident and knew I couldn't "suck it in" all night with my weak muscles).. It seemed to work initially, but then as the night went on my muscles started tuckering out more and hurting more - as they were fighting against the thing and making them ultimately work harder (who would have thought!!!)
Sometimes even having a tight bra on makes this all worse.. I have different tightness of bras for where my IVIG is/ how strong i'm feeling! I always worry i'm doing some sort of permament damage with the way this all feels!!! not to mention, it's not exactly fun!
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Old 06-06-2013, 06:35 AM #12
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I had the same experience with the binder. It is only good for duration of about 4 hours. Then you need to take it off and rest. I myself have been looking for a bra/torso solution that would be supportive, yet comfortable and hook in the front for similar reasons. When I find something that works, I will let you know.

kathie
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