Quote:
Originally Posted by Mastas
1. Who has had one?
2. Was your thymus enlarged or have a tumor?
3. did you have DaVinci
4. did it help?
Just met with surgeon... CT scan shows normal, although he says that it may not be. Just trying to decide if I should have it removed or not....it would be daVinci. No huge rush unless my symptoms take a rapid turn for the worse.
Thank you all!!!
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1. Me
2. Yes, tumor
3. No, thoracic surgeon was not confident he could get it all with a minimally invasive method. We discussed it, he said that while he is on board with the robotic method he felt the right decision in my case was a full sternotomy.
4. Not sure. It certainly needed to be done in my case (tumor the size of a softball). I believe my ptosis is not as bad, my bulbar symptoms are definitely not as bad. I have advanced to a more generalized MG since (but my MG is still very well controlled by mestinon only.)
Good luck in making your decision.
05-23-2013, 12:50 PM
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