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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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#1 | ||
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New Member
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I saw your post where you were wondering if you should go to the ER, but didn't want to. I wanted to be sure you were okay
![]() I have the same breathing issues. Thanks so your post, if I get worse tonight, I will go to ER. If you hadn't posted so that others could reply, I would have done my best to ignore them and wait the 2 weeks for my breathing tests. <hug> Kim |
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#2 | ||
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Junior Member
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This was one of my 1st symptoms. Of course, I was told it was a "globus sensation" (aka mostly in your head)...it appeared almost from no where one day. I continue to have it, but not as frequently. I do have some tenderness when touching my neck , an occ achy feeling in my throat and rare swallowing issues...I guess this is part of what ails me?
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#3 | ||
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Junior Member
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I do not get a closing sensation but I have an issue with anything being around the front of my neck. The last hair cut I had the guy wraps the apron around my neck with tissue paper. I asked him not to do it so tight and put my finger in between to loosen it up. He got offended and said "It's just tissue paper". The smallest pressure on my throat makes it seam like I am being smothered. My Brother wanted me to carry his hat around my neck by the string. I told him I couldn't after trying. He said "Wow your being overly sensitive."
I do choke quite often and some times just aspirate on my own saliva. Sometimes when I take my meds I notice that I haven't swallowed. I don't know why I delay but I don't hesitate on purpose. I do it with water and coffee too. a minute or to later I realize I still have a mouthful of water. My pulse ox during the day 92-96. I use a cpap at night for sleep apnea. |
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