Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS.

Reply
 
Thread Tools Display Modes
Old 10-16-2015, 11:24 AM #1
Kimmykim13 Kimmykim13 is offline
New Member
 
Join Date: Oct 2015
Posts: 2
8 yr Member
Kimmykim13 Kimmykim13 is offline
New Member
 
Join Date: Oct 2015
Posts: 2
8 yr Member
Default Hi Tracy

I saw your post where you were wondering if you should go to the ER, but didn't want to. I wanted to be sure you were okay

I have the same breathing issues. Thanks so your post, if I get worse tonight, I will go to ER. If you hadn't posted so that others could reply, I would have done my best to ignore them and wait the 2 weeks for my breathing tests.

<hug> Kim
Kimmykim13 is offline   Reply With QuoteReply With Quote
Old 10-19-2015, 06:20 PM #2
mj mj is offline
Junior Member
 
Join Date: Aug 2015
Posts: 21
8 yr Member
mj mj is offline
Junior Member
 
Join Date: Aug 2015
Posts: 21
8 yr Member
Default

This was one of my 1st symptoms. Of course, I was told it was a "globus sensation" (aka mostly in your head)...it appeared almost from no where one day. I continue to have it, but not as frequently. I do have some tenderness when touching my neck , an occ achy feeling in my throat and rare swallowing issues...I guess this is part of what ails me?
mj is offline   Reply With QuoteReply With Quote
Old 10-25-2015, 10:49 AM #3
Bakerman Bakerman is offline
Junior Member
 
Join Date: Jul 2015
Location: Dallas
Posts: 16
8 yr Member
Bakerman Bakerman is offline
Junior Member
 
Join Date: Jul 2015
Location: Dallas
Posts: 16
8 yr Member
Default

I do not get a closing sensation but I have an issue with anything being around the front of my neck. The last hair cut I had the guy wraps the apron around my neck with tissue paper. I asked him not to do it so tight and put my finger in between to loosen it up. He got offended and said "It's just tissue paper". The smallest pressure on my throat makes it seam like I am being smothered. My Brother wanted me to carry his hat around my neck by the string. I told him I couldn't after trying. He said "Wow your being overly sensitive."
I do choke quite often and some times just aspirate on my own saliva.
Sometimes when I take my meds I notice that I haven't swallowed. I don't know why I delay but I don't hesitate on purpose. I do it with water and coffee too. a minute or to later I realize I still have a mouthful of water.

My pulse ox during the day 92-96. I use a cpap at night for sleep apnea.
Bakerman is offline   Reply With QuoteReply With Quote
Old 10-26-2015, 09:25 AM #4
juliejayne juliejayne is offline
Member
 
Join Date: Apr 2014
Location: Dordrecht, Netherlands
Posts: 225
10 yr Member
juliejayne juliejayne is offline
Member
 
Join Date: Apr 2014
Location: Dordrecht, Netherlands
Posts: 225
10 yr Member
Default

Quote:
Originally Posted by Bakerman View Post
I do not get a closing sensation but I have an issue with anything being around the front of my neck. The last hair cut I had the guy wraps the apron around my neck with tissue paper. I asked him not to do it so tight and put my finger in between to loosen it up. He got offended and said "It's just tissue paper". The smallest pressure on my throat makes it seam like I am being smothered.
Interesting that is, I have always had that same sensation since I was a child. How long have you had that feeling?
juliejayne is offline   Reply With QuoteReply With Quote
Old 10-26-2015, 09:43 PM #5
Bakerman Bakerman is offline
Junior Member
 
Join Date: Jul 2015
Location: Dallas
Posts: 16
8 yr Member
Bakerman Bakerman is offline
Junior Member
 
Join Date: Jul 2015
Location: Dallas
Posts: 16
8 yr Member
Default

Quote:
Originally Posted by juliejayne View Post
Interesting that is, I have always had that same sensation since I was a child. How long have you had that feeling?
I noticed it around 2002. I would have been 34. I began having auto immune disorders around 1997 after a laparotomy surgery.
Bakerman is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Strange Sensations Kitty Multiple Sclerosis 9 02-15-2011 07:03 PM
strange sensations making clothes not comfy Erin524 Multiple Sclerosis 15 04-16-2009 05:31 PM
strange sensations in my face..... TraceyW Thoracic Outlet Syndrome 15 08-26-2008 06:31 AM
hot and cold sensations bamyx4jc Parkinson's Disease 3 02-01-2008 05:25 PM
Odd sensations? fanfaire Peripheral Neuropathy 19 09-24-2007 05:03 PM


All times are GMT -5. The time now is 06:04 PM.


Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.