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Old 07-05-2013, 09:26 PM #11
catie catie is offline
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Join Date: Feb 2010
Posts: 99
15 yr Member
catie catie is offline
Junior Member
 
Join Date: Feb 2010
Posts: 99
15 yr Member
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Hi Rach! Welcome back! I do recall your posts and contributions from years past.

It's amazing to me how long it takes some of us to get the diagnosis. I hope you find some answers soon. I am also sero-negative and EMG negative (tho 1 EMG was questionable, instead of negative, when ready by a Mayo doc).

Have you had a tensilon test performed? In addition to a positive response to Mestinon, this is what really sealed the diagnosis for me. It was such an easy test to perform and they were able to objectively measure my eye deviation before and after the tensilon injection. I was surprised that this test wasn't performed during my first 7 years of symptoms.

I'm hoping your appointment on the 16th goes well. Do let us know the outcome.

Cate
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