[sandy56]

Just got over 3 days of the flu with high fever(102), headache and body aches. I had been doing pretty well overall, but now I am weak, have bad double vision and swollow/choke issues. I called my Neuro's office and was told that I could not increase my mestinon until I was seen by the doctor. I am currently on 60 Mg 4 times a day but it is not really helping me later in the day. I have an appt on Tues to see the PA.

I am a bit discouraged as I had been able to cut my mestinon down to 30 Mg 3 times a day. I had also tapered off prednisone 6 weeks ago. I don't know what the plan will be as I have also just been diagnosed with severe osteoprosis, so going back on prednisone wont be an option for me. I guess I thought I would be one of the mild MG cases.
So many of you have been through so much. How do you do it?

I am now only working 2 days a week and it takes days to recover. I don't really go out much anymore since I can barely drive and travel/vacation is impossible. I am seeing 4 doctors on a routine basis now. I never thought I would be this person. My life is getting smaller. And smaller.

Sorry for the rant. My family is great but dont really understand what I'm going through. It is nice to know that you get it

Sandy