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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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Went to my neuro yesterday, for the past 2 - 3 months , all of my joints from head to toe, hurt so bad sometimes I can't barely walk, the pain is terrible, my fingers are all swollen , can bend etc., etc., pain medicine very rarely helps much, if I take a lot of ibuprofen or aleve it will take the edge off, if I do any type of work, by evening I am one hot mess......... my family doctor months ago says my esr sed rate is 50, and even though the test for RA came back negative he advised that didn't mean any things, he said some thing is definitely going on...but didn't go any further to find out what? so my neuro told me she is very concerned I look ill and my joints are swollen and this definatly can be a another autoimmune but this one seems to be taken over and making the mg worse, she advised a rheumatologist, I called can't get in till December. She said it doesn't have to be ra there are many things it could be, but felt I needed to get it handled as the pain etc., I am in , need to be found out what it is I have. Anyone else have any of this?
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#2 | ||
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Sorry you have this!! I don't have a confirmed diagnosis, I'm still a mystery.. but I do get IVIG for this.. I get awful joint pains.. It makes me so mad, since I feel like I should just mentally over come it, but it makes my body not be able to do things as It can't just push through it sometimes - bending a knee to walk up stairs or bending my wrists.. My wrists are the worst.. but it can affect, fingers, elbows, AC joints, ankles, knees and hips...
My ANA is always quite elevated.. but ESR/RA negative.. they started me on plaquenil and it helps tremendously.. I thought for a while it could be a reaction to IVIG.. but it worsens when the IVIG starts wearing off.. and I did have some before IVIG.. Good luck! |
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