For mods: yes this is the same question as posted in "neuromuscular" but I think it's better to ask to MG patients. I cannot delete the other post. Sorry if this is not correct!.

I wonder if there's someone here who recognises one of my most important problems.

MG is described as a "weaker when you move, stronger when you rest" disease.

But I have a different kind of weakness, besides the "normal MG" weakness, and it's one my docs can't clarify and why they think there's something different going on.

It's a typical kind of muscle weakness: a general muscle weakness which is caused by resting after exercise.
It's not the exercise, nor the rest that makes me weak, it's the combination.

An example:
When I walk, I feel my muscles getting tired. The more I keep forcing myself to go on, the weaker I feel myself getting. Ok, so far so good, that's normal for my MG. But, the big difference, is I get my most severe general weakness, is when I rest after the walk. It's weird I was first able to keep on walking (yes it got more difficult with every step I took, but with all my fighting I was still able to go on), but once I rest, I can't even replace my legs when they're lying funny. I'm terribly weak all over.

It's not an option not to rest after simple exercises.

Does someone recognise this?