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Old 02-07-2014, 10:14 AM #11
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They try it before which test and if it works then what?
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Old 02-07-2014, 12:33 PM #12
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I have MG and my weakness is predominantly right-sided. My eye and facial droop is very one sided - although if I have really overdone it the other side will show mild weakness....but, by that time the right is so bad it only shows in pictures etc!! My arms and legs seem evenly weak but when my legs are bad I tend to limp a little compensating for the right side - so it seems I am weaker there too!

Good luck with getting to the bottom of this, limbo is not a nice place to be and I really hope you get some answers (and medication) soon. Let us know how you get on x
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Old 02-07-2014, 06:12 PM #13
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Quote:
Originally Posted by sham0968 View Post
Yes they are. So what tests came back positive for MS and negative for MG. If you don't mind answering
I know they did a test where they put some sticky glue like goop on my head and attached some sort of electrodes. I had to sit in a chair while they did all kinds of testing. I just remember the nurse telling me that I didn't have MG.

I had an MRI with contrast and that's what the Neuro based his dx on. I know they did extensive blood tests but I'm thinking that was for Lyme and Lupus.

I have progressed alot since 2005 when I was dx. But I think I've had MS for alot longer than just since '05. That was just when I finally got an answer to all the strange sx I'd had for many years.
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Old 02-07-2014, 11:54 PM #14
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Quote:
Originally Posted by Kitty View Post
I know they did a test where they put some sticky glue like goop on my head and attached some sort of electrodes. I had to sit in a chair while they did all kinds of testing. I just remember the nurse telling me that I didn't have MG.

I had an MRI with contrast and that's what the Neuro based his dx on. I know they did extensive blood tests but I'm thinking that was for Lyme and Lupus.

I have progressed alot since 2005 when I was dx. But I think I've had MS for alot longer than just since '05. That was just when I finally got an answer to all the strange sx I'd had for many years.
My MRI showed nothing. So I do not know. I finally got a call back about my insurance and woman told ut if they me to hold for the woman that I was suppose to talk to and she gave me number to call back if we got disconnected and we did get disconnected and when I tried back all I got was answering machine but if they did not want to talk to someone on a Friday, why did they call me in first place...ugh..Had to vent a little..
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Old 03-06-2014, 09:19 PM #15
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I have similar problems with classic MG symptoms with gait and balance issues. I also have small fiber neuropathy ( leg pain and unusual sensation) and Neurotin has been a life saver for me in regards to pain. My right side is quite weaker including my face (left side of face is normal) and I will be starting Mestinon this week after an eye exam. I think I also have spasticity of the right leg. My right leg feels like it wooden. I feel like my leg is prosthetic and wooden especially when I walk and try to lift it up in PT. Yes all of my readings within the past few days points to MS as well. My MRI without constrast (allergic to constrast) showed white matter and vascular changes (no stroke)and just posted in MS forum also since I'm new here. I will keep you posted with any changes and I hope you will update us as well. Something is wrong and MG normally does not cause this. My walking is almost stroke like.
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