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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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#1 | |||
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Junior Member
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Is one side of your body weaker than the other? When I goggled it then it came up MS? Now one of my doctors thought that I may have MS in the past but did not show up on CT scan. Both symptoms of MS and Mg are similar in a way because MS can cause muscle pain. The only thing that really makes me think mg is because of the fact that I completely lost my breath a couple of times. However when I take Gabapentin, it helps me.it doesn't completely take my symptoms away. I quit taking it for a couple of days because it does make me retain water somewhat but when I came off of it, then I was in some pain. So I started back yesterday and the pain started easing. My MD had prescribed it for me. Then when I got put in the hospital, the did not give it to me the next day. Then that afternoon they did not give it to me and I was in major pain so I reached in my pocketbook and took one and my muscles started easing in a bit. last night my muscle felt like that they had me in a death grip and my mouth was feeling like it was locking up very painful and tongue was weak and I took the meds and it eased off.
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#2 | ||
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Member
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Have you posted on the MS forum? Those folks are great about helping make sense of MS type symptoms and about CT scans and other MS diagnostic stuff. The level of pain and spasticity you post about seems like it could be more than is typical with MG. Of course symptoms can get "lost in the translation" from your body to the computer screen.
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#3 | |||
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Junior Member
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No I haven't but I am on another site with MS. My MD and eye doctor first though MS. The neurologist says MG. When I go to new neuro, he will most likely after doing blood work will send me for spinal tap first to rule out MS. I do not know. I wish that I had nothing but I know that it is something and I just want to be on the right meds. Thanks for your reply
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#4 | ||
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Member
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Yes, you are in a tough spot. Hope you find an answer soon. I also had the "MS/MG" terms tossed around, depending on what doctor I was seeing. It was a scary time!
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#5 | |||
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Wisest Elder Ever
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I have MS but have noticed major left side weakness lately. I just had surgery (non MS stuff) and thought that might be the reason. MS and surgery are not a good combo.
![]() I was tested for MG when they were trying to figure out what I had and that came back negative. But they did diagnose me with MS. I think the two diseases are very similar.
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These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here. |
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#6 | |||
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Junior Member
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Quote:
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"Thanks for this!" says: | Kitty (02-07-2014) |
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#7 | |||
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Junior Member
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#8 | ||
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Junior Member
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I have similar problems with classic MG symptoms with gait and balance issues. I also have small fiber neuropathy ( leg pain and unusual sensation) and Neurotin has been a life saver for me in regards to pain. My right side is quite weaker including my face (left side of face is normal) and I will be starting Mestinon this week after an eye exam. I think I also have spasticity of the right leg. My right leg feels like it wooden. I feel like my leg is prosthetic and wooden especially when I walk and try to lift it up in PT. Yes all of my readings within the past few days points to MS as well. My MRI without constrast (allergic to constrast) showed white matter and vascular changes (no stroke)and just posted in MS forum also since I'm new here. I will keep you posted with any changes and I hope you will update us as well. Something is wrong and MG normally does not cause this. My walking is almost stroke like.
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