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| Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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05-19-2014, 02:16 PM
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I came off high dose, long term pred and I did it VERY slowly. It was BRUTAL. In fact, the taper was almost as long as the course and I can say it was really hard for me. It was the first time I could understand what an addict goes thru as I felt physiological cravings. And with each reduction I felt like I'd been slammed by a bus.
Unfortunately all my sx came back 10 fold after the pred. Now it's onto what's next. Tried IVIG and not sure that's the answer due to some persisting hives. Open to any suggestions otherwise. the de said cellcept, rituxan, imuran or methotrexate  :
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