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Old 05-09-2014, 07:32 PM #1
Steelworker Steelworker is offline
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Default Quick question
In the beginning does/can MG present as a daily thing for several days and then go away for several days only to return again?
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Old 05-09-2014, 09:29 PM #2
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Early on in the disease and even now two years later I have "good" and "bad" days that are often days apart. The good news is, at least for me, is that the bad days are less frequent now that I have the medication dosing correct, and have the experience to know when to modify Mestinon dosage to deal with the changes in symptoms.
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Old 05-09-2014, 10:11 PM #3
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And do you take the mestinon on the good days or is it prn?
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Old 05-11-2014, 06:13 PM #4
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Hi,
I'm on a very low dose of Mestinon. Only 3 times a day total 180 mg. A day. I have on again of again leg pain. I sometimes have to adjust the meds or go back on 20 MG a day of prednisone to get the pain to stop. Does anyone else have leg pain in mild cases of MG? My diagnosis was only 6 months ago.

Thanks !
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Old 05-11-2014, 08:07 PM #5
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Do you take Statins?
Mike
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Old 05-11-2014, 09:03 PM #6
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Do you take Statins?
Mike
Yes Lipitor 40 mg
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Old 05-11-2014, 09:23 PM #7
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Quote:
Originally Posted by Steelworker View Post
And do you take the mestinon on the good days or is it prn?
Unless my symptoms persist for several days I don't change my mestinon dosing.
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Old 05-12-2014, 07:41 AM #8
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Quote:
Originally Posted by drpdhmr View Post
Unless my symptoms persist for several days I don't change my mestinon dosing.
The pain in my legs is so overwhelming I cannot do anything. Walking a few steps is painful and my tolerance is high. If I take 500 mg of ibuprofen it will ease off. Most of the time if it starts prednisone is the only thing that will calm it down. I have added spinach or Kale to green smoothies and that also will give some relief. Just trying to learn what works and does not. Any others out there?
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Old 05-12-2014, 08:15 AM #9
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My neuro-muscular took me off statins. He said they were one of the worst drugs on the market. I was so bad at the time I was considering a wheelchair. My legs got better right away when I stopped statins. You might want to discuss this with your doctor.
Mike
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Old 05-12-2014, 11:30 AM #10
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Quote:
Originally Posted by pingpongman View Post
My neuro-muscular took me off statins. He said they were one of the worst drugs on the market. I was so bad at the time I was considering a wheelchair. My legs got better right away when I stopped statins. You might want to discuss this with your doctor.
Mike
Thanks I will check on that!
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