Hi, thanks again did not know about adding flax oil or walnuts while on prednisone. I will add flax oil to my green shakes in the morning. Not sure what my numbers were but bad enough for my pulmonary doctor to be very alarmed . He has followed me since 1994. Of course today with the large amounts of prednisone I have zoomed around all day. Sleep is difficult because of being wired from the prednisone. Yes MIPS was done please tell me MEP not sure what that is. You really are so well informed. Still gathering information.
Thanks again!

Annie,
Just looked up MIP and yes he did both test you mentioned. Not sure of numbers but as I said he was not pleased. He clearly saw in the sting that the rescue inhaler during testing made no change in results. This was when he asked more about overall strength. You know I had done well until April. The prednisone is really helping the coughing and breathing. Just need to slow myself down. Thanks again. Feeling very wired or batteries charged to high. I know that sounds crazy.

Pred can make you feel wired. It affects people differently. And insomnia may follow in those people in who it has that effect.

Pred is an antiprostaglandin. That's why good prostaglandins like omega 3s (no matter what the source, such as fish) are good to take while on it. Pred can reduce the gel coating of your stomach due to that, and you need to maintain a healthy stomach! Good prostaglandins will help you to do that. They're good for other things as well (i.e., brain function).

Some people even take vitamin C while on immunosuppressants to help with infections. Though do not take C at the time of day you take Calcium/Vitamin D. Calcium is best absorbed with food.

Get a copy of your test results. It's good for you to know what your numbers are (normal and abnormal). It sounds like you have a smart doctor who gets MG.

Annie

Hi,
All much appreciated. Yes my experience with prednisone has been wired. I have had to take it over the years for asthma flares. I have been adding flax oil and walnuts to my kale/spinach and fruit shakes. I certainly have an energy boost going on due to the prednisone. Still having some wheezing and coughing as the Pred . is decreased. Talked to my doctor and he wants me to stay the course. Been out on the salt water in the evenings and coughing is much less.

Yes I'm very fortunate to have a great team between my pulmonary and neurology docs.

Thanks again,
Debbie

I wasn't on the look out for a tipping point and new, missed the opportunity to pay attention. I felt like a wet noodle throughout the winter but was comparing that to pre-MG life. Now though, typing this reply is exhausting. It's been in the high 90's all week and we're topping 100 at moment - with more 100+ days for most of the rest of the week.

We live in a mobile home, do not have AC and couldn't afford the electricity if we did have one. Like I said, I don't where the tipping point is - but I passed it a long time ago.

Angell, You don't have ANY electricity? OMG. Or is it the BILL you can't afford? Do you use wifi? There has to be some kind of state program that could help you!! In my state, it's criminal to allow someone to be in that level of heat.

Then you don't even have a refrigerator? I guess I can't suggest a fan or cool packs then.

This isn't even funny. Can you call your state offices and ask them what kind of program that might assist you?

I hope you can find some relief. I'm not even amused that we can't take care of our own people in this country!


Annie