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How can it be MG when all tests come back normal?

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Old 07-22-2014, 02:07 PM #1
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Originally Posted by Denise9293 View Post
Since December 2013, I have had extreme fatigue and muscle weakness in my limbs. Also experience trouble swallowing and shortness of breath. My neurologist was at a loss but decided to try Mestinon. Symptoms have improved some but I now have twitchy eyes and muscle cramps from the med. I was told that 5% of MG patients test normal. How can I just accept that diagnosis without proof?
My neuro told me that somewhere around 10 percent of MG sufferers are negative on all tests. They are diagnosed by presenting symptoms and response to mestinon.
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Old 08-18-2014, 12:47 PM #2
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That is what the specialist in the hospital told me. He diagnosed me with Tensilon but all other tests have been negative. The problem I am having is that no outside neurologist will treat me. Apparently they don't believe in the 10-15% negative MG.
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Old 08-18-2014, 03:20 PM #3
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Keep hunting, you will find one with a brain. Maybe
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