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How can it be MG when all tests come back normal?

 
 
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Old 08-22-2014, 06:53 AM #16
juliejayne juliejayne is offline
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juliejayne juliejayne is offline
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Join Date: Apr 2014
Location: Dordrecht, Netherlands
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LRP4 antibody tests are not readily available, so far as I am aware.

I guess each of these tests is expensive, so it is no surprise that, with a rare disease if 80% are AChR positive 10% MuSK positive and some smaller percentage maybe LRP4 positive, then the rarer the version you have the more costly the tests will get.

If you have a medical team accepting that you are seronegative MG, the only reason that an extra test would be worthwhile would be if that particular version of MG responded to different treatments.
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