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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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Junior Member
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Hi all,
I'm new here and have a few MG questions. I am waiting for an "MG panel" that my dr ordered on me to result, but have a few questions in the meantime. I know that a hallmark of MG is that you feel better after resting, but my question is how long does that take? My muscles get tired VERY easily. I do tend to push myself, but then I am tired and even more easily fatigued the next day or two (depending on how far I pushed myself the day before). Sometimes I feel better after a short rest (if I am only slightly weak), sometimes it takes a few days to feel better if I pushed myself too hard. Also, I'm not always fully charged when I wake up. I am on Cymbalta and I think that is causing me to have night sweats. I'm waking up in the morning very very hot and overheated; I think this might be why I don't feel great getting out of bed. Another weird thing is that when I wake up (hot!), my left eyelid stays shut when my right opens. Not glued shut, just doesn't open. It does open slowly as I get out of bed, cool down and get going. I have been complaining that my eyes feel like they have to work to focus and everyone tells me lately how tired I look. I think this is because my eyes are not super droopy- just droopy enough that I look like I have a headache or am tired. What does your muscle fatigue feel like? Sometimes, my muscles just feel tired. I had to cancel a date with my friend last weekend because my arms felt too weak to turn the steering wheel. Other times, my muscles shake (like at the end of a really strenuous workout). Is this what it's like for you guys? Sorry for the long post- hope you all are well and thanks to anyone who has the time to reply. Barb |
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"Thanks for this!" says: | AnnieB3 (11-15-2014) |
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