Morning all,
I talked with my neuro last night over the phone. He reviewed my results and confirmed diagnosis of MG. He told me I could either start on prednisone OR mestinon but he wanted to start prednisone. He stated that prednisone helps manage the disease whereby mestinon only manages the symptoms.

While this seems true (from what I've read) I'm confused as to his position of it's one or the other. I have read other's posts that they are on both medications. Perhaps it's because I'm new that he's starting slow?

I definitely want to find a new neuro. He was very blasé about the diagnosis- stating that some people "don't even know they have it." Really? I definitely know I have it and I know I couldn't hardly talk or swallow last night and I definitely know I want a doc that acknowledges my symptoms, their affect on my life and validates that.

I have so much going on in my life- 4 kids (1 who is only 2), in school to be a Nurse Practitioner, working full time- I am praying that once I get on meds I can feel good enough to make it through school to my new career. What I don't need is someone telling my husband that this is no big deal. I already feel like my level of what I can do has changed and my husband has been very supportive of that. I hate to see that change with a neuro who acts like I'm making a bigger deal of this than it is.

I'm in Maryland- not too far from Baltimore. I see that Univ of MD and Hopkins both have MG clinics- does anyone have any experience or heard anything about the clinics?

Thanks for listening to my slight rant!
Barb