Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS.

 
 
Thread Tools Display Modes
Prev Previous Post   Next Post Next
Old 12-12-2014, 05:57 PM #1
Tracy9 Tracy9 is offline
Member
 
Join Date: Dec 2010
Posts: 166
10 yr Member
Tracy9 Tracy9 is offline
Member
 
Join Date: Dec 2010
Posts: 166
10 yr Member
Question Rituxan Questions

I am looking at switching over from IVIG to Rituxan (suggested by my doctor of course.) So I'm trying to wrap my brain around this. First of all I am in awe of all you warriors doing Rituxan! I looked back here to when I got diagnosed, just 3-4 years ago people were terrified of it and hardly anyone wanted to try it; only the worst of the worst were doing it. Now, it seems like LOTS of you are on Rituxan and getting great results!

I'd like to ask a couple of simple questions to try and get a feel for how this has been going for most of you:


1. Has the Rituxan helped you? If so, to what degree?
2. Did you have side effects? If so, what were they and how long did they last?
3. What was your treatment protocol / status when you started it? Had you failed every other treatment and were in dire straits, or did you try it because it was the best chance for getting better?

I hope that makes sense. Previously only people who were at death's door seemed to get Rituxan, but lately it seems like more people are getting it just to reap the benefits before they are visiting the ICU like a revolving door.

Thanks so much for helping me out! I'm just waiting on insurance approval.
Tracy9 is offline   Reply With QuoteReply With Quote
 

Tags
rituxan


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Rituxan? huntress Myasthenia Gravis 5 04-22-2014 11:48 PM
Rituximab/Rituxan questions? tinglytoes Autoimmune Diseases 4 06-23-2012 03:52 AM
Rituximab/Rituxan questions? tinglytoes Medications & Treatments 0 12-01-2009 12:15 PM
Rituxan for MG Janet Kelley Myasthenia Gravis 10 07-30-2008 08:18 PM
Rituxan Snoopy Multiple Sclerosis 1 02-14-2008 07:21 PM


All times are GMT -5. The time now is 10:35 PM.


Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.