[Sandrine]

Hello, and thanks in advance for any help I may receive.

I have two rare autoimmune conditions already - cryoglobulinemia and aquired angioedema II (apparently one of only 40 ever diagnosed in the US with this type where my own body is attacking my c1 esterase). These made it difficult for me to tell if some of the more severe and odd symptoms I was having were cryo symptoms or something else, as cryoglobulinemia can cause all sorts of problems and symptoms. I am a part of a support group though where we share our symptoms, and a few I have just weren't fitting with everyone else's. And one in particular has been getting so bad - the double vision - I scurried off to the opthalmologists yesterday.

The opthalmologist essentially found that I have a 'wandering eye'. He was very brusque however, and very quick, and wouldn't you know it, my usual blurriness didn't seem so bad yesterday. Anyway, I have a drooping lid, an eye with exotropia (despite having perfect vision until it's recent decline), sometimes my whole face looks droopy, hoarseness if I talk more than a few minutes, trouble breathing (feels like something heavy pressing down on my chest - and at times I am blue around my mouth), and I have been getting these horribly painful esophageal spasms over the last two weeks. Excruciating. Of course I haven't had a work up yet. My doctor did a test for MG after seeing my droopy eye and hearing my voice.

Some of these things happen with cryo, blurriness, hoarseness, and even drooping I think, and pulmonary issues, but not the wandering eye part. It has gotten so bad ain't is incredibly difficult to read. Right now I have patched one of my eyes to try to minimize the double vision, however it's still there.

Does this sound like I may have MG? Which doctor would be the best to see?

Thank you.