Hello everyone!!! I hope y'all have all been doing well!!

I have been maintaining fairly well on IVIG every 3 weeks.. but i definitely feel when it wears off , i can't quite make it to the 3 week mark without symptoms getting worse... I had a spell of weakness a few months ago that was scary!

Anyhow... My doc wants to try me on SubQ IVIG, since it seems like i'll likely be doing this for a LONG time (going on 4.5 years now).. He said that I can do it from home weekly (so hopefully wont' feel it wearing off going so long without it).. and I won't have to sit there for 8 hours to get infused... Plus I tend to get aseptic meningitis at times..

ANyone have any experience with this? I'm curious to hear what Y'all think!

Thanks in advance!