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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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#1 | ||
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Newly Joined
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Hi, I think I have MG. These are my symptoms:
Eyes: 4 months ago I woke up with a droopy eyelid and blurry vision out of nowhere. My vision seems to be getting worse progressively but the droopy eyelid goes away if I sleep for 9 hours at least. Hands/arms/legs: I get extreme weakness in my hands and legs, almost like a dull pain if I didnt sleep enough or have been working too much. It comes on suddenly, just gets worse throughout the day if I don't rest/sleep. Face: My facial muscles slacken(I always look sad/blank), I cant close my mouth, I have difficulty breathing and my speech gets slurred. This is only when I seem to be having an "episode". Weakness: I don't have the energy I used to anymore. I used to be able to pull all nighters all the time and now I'm just hoping to get through the day lol. I haven't done the ice test but my eyelids open up whenever I splash cold water on my face. Also hot baths make me dizzy and weak. I'm just 18 and this is ridiculous. My neuro thinks I have migraines and anxiety, got me tested for MS and pernicious anaemia even. Dont have any vitamin deficiencies. The problem is I'm fine if I've rested well so doctors havent been able to pick on this. I have 2 main questions: 1. Does this sound like MG? 2. How effective are MG meds? Lets say you have 5 exams each day for 2 weeks(one after another), would meds give you enough energy to help you get through that? Sorry I'm freaking out but I really have no idea what I will do if I have MG. Thanks so much. |
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#2 | |||
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Member
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Your Neuro needs to do an MG blood panel which needs to go to Mayo. Your symptoms sound like MG. If you get double vision you need to see a neuro-opto
he can give you a DX. All of this takes time and each person is different. What you really need to do is find a Neuro that has MG experience. I wish you the best. Mike |
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#3 | ||
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Junior Member
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Hi
Your symptoms sound like MG...But defentily you need to check and confirm that through specialized physician, I would recommend to start with a neurologist.. No need to freak out...MG can be controlled well through proper medication. I wish you all the best |
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