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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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#11 | ||
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Grand Magnate
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Limpy, How long have you had lupus? I can't believe you've had trigger finger for so long.
I don't think I have lupus, but I have some sort of inflammatory process going on. I can't be out in the sun more than five minutes. I get sores in the roof of my mouth, horrid muscle pain, and have the aches one has with the flu. I also can get a rash (vacuolar interface dermatitis) in the sun, but I don't ever stay out in it that long! Thanks for responding! Don't you just "love" AIs?! ![]() Annie |
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#12 | |||
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Member
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I don't have lupus, not officially anyway. I've had positive SSA/ro antibodies for a connective tissue disease, such as sjogrens, lupus, RA, and one other than I can't remember now.
I do have sjogrens and Raynaud's, but my main problem is LEMS. I have all the symptoms of lupus, such as joint pain, red rash across the bridge of the nose, which becomes more pronounced when I get hot or in the sun, flu like symptoms, sores in the roof of my mouth and in my nose that come and go, swollen glands,and lots of muscle pain. Fortunately, ibuprofen helps to manage most of the pain, but also have neuropathy, which does not respond to medications. The positive thing is that with multiple AIs, my Lems could be purely autoimmune instead of that caused by cancer. |
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