Thanks for your answers.

I agree with you that stress makes i worse.

I have an appointment with my neuro next week so i will ask her about thymectomy then.

Anyone else here that have been diagnosed with SFEMG test?

I am seronegative and EMG in my arm and leg muscles looked ok.
I also have no other muscle problems than difficulty swallowing.
They did a SFEMG on the musles around my mouth and told me that it was MG after that.

I have tried Mestinone now for a few weeks with no luck.
My neuro now wants me to start with prednisone 30mg/day.

Have you tried upping Mestinon...

Other option is Azathioprine/Imuran?

Im currently taking 60 mg Mestinoe 3 times a day.
I have tried having dinner from half an hour up to two hours after taking the pill but still cant swallow solid food properly.

I have also tried taking the pills every three hours but then my muscles started to twitch, so i guess that was to much.

Does Azathioprine/Imuran generally have less side effects than prednisone?

Quick answer YES, in any way possible try to stay away from PREDISONE it has adverse side effects! and once you start you can't stop suddenly, with Imuran it's the total opposite.

In my case I'm still having problems from PREDISONE...It took forever to wean off, I've been off since June 2016.

Imuran's downfall is that it takes longer to have it's full effect, it took me 8 months as I was also taking Prednisone at the same time waiting for the Imuran to come to its fullest effect then we started weaning off Preds and that alone was a rough ride...I have intense muscle pain ever since, quads and arms...

I'm sure others will Chime in and attest to Predisone side effects...If you can live with your symptoms and give the Imuran a chance to reach its fullest that's the route I would take...

Talk to your Neurologist about it and see what he/she thinks about it.Do some research on Preds and make your assomption based on what you feel comfortable with.

Good luck.

Ok thank you, I will look into that. I was supposed to start predisone last week and then taper 5 mg every week. But i havnt been able to take any pills yet because i worry about side effects.

Sorry to hear that you still have problem from predisone. For how long was you on predisone and how long did it take to wean off?

I was first put on Prednisone in April 2015 when I was admitted in ICU when I had a severe crisis! I couldn't breathe, talk, swallow, hold my head up and barely move my arms...

They gave me a bunch of IVIG for 3 consecutive days and slowly gave me Predisone, they started with 5mg/day and kept upping every 4th day and reached 60mg daily by late May and kept on till October 2015 and then started to tapper off in January 2016 and took till June to fully wean off, it was a bumpy road to get off I had to up dosage 3 times during the time I started weaning off because of side effects.

I'm now on 200mg of Imuran taken daily, we tried to lower the dose but my symptoms worsened...I did 84 PlasmaPheresies till the month of October 2016, my Neurologist got me off because of complications and now on IVIg every 3rd week...

IVIg for my symptoms isn't as effective as PlasmaPheresies but overall I'm feeling better, we were finally able to up my hemoglobins back up and I seem to have more strength but the trade off is I have a lot of fascial numbness and have a hard time speaking at times but my swallowing and vision are very good so I'm learning to live with.