[babsg29]

I just wanted to introduce myself. My name is Barbara. I was diagnosed with generalized (+serum)MG at 28, 8 weeks after giving birth to my second child. I also had a large tumor on my thymus gland and had it removed 2 months after my diagnosis. I haven't responded to any treatment (prednisone, mestinon, imuran, cellcept, IVIg, or plasmaphresis) I am on mestinon, imuran, prednisone (just 20 every other day......to many side effects) now. I was for the past year and half doing plasmaphresis twice a week to just keep me stable. But I had 3 Staff infections in my venus cath, a blood clot in my neck (they just switched sides) and then the big clot in my upper vena cava (large vein leading to your heart) now still on the blood thinners and no where to put a cath (cause anywhere you put one leads to the vena cava) I am worse than ever. I am now 31, just had my 3 year anniversary. They say the first 3 years are the worst, RIGHT!!!!!Last year I was also diagnosed with fibromyalgia. My RA said the trauma of the MG and all it and the meds and treatments have done to my body, pushed me right into the fibromyalgia. Lucky me. Sorry to be so pessitismic, but actually this is one of my good days. I also have servere depression, generalized anxiety disorder, anemia, b12 defficiency, chronic migraines and TMJ disorder (which I had surgery on in 1998) and haven't had a problem out of until last year. now it is in pain every day, just like the rest of my body that hardly works. And to top it off.....my husband, who has not been supportive since I got sick, decided our marriage would be better off spent at separate households. Sorry for the gripe session, I know it was suppose to be an introduction, so atleast now you know I am losing my mind....lol.....but thanks for listening....I don't get that......no one really wants you to tell them how it is, when they ask.....they'd much rather hear....."I am fine"......

Take care and thanks again,

Barbara