Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS.


advertisement
 
 
Thread Tools Display Modes
Prev Previous Post   Next Post Next
Old 04-15-2008, 02:05 PM #1
Janet Kelley Janet Kelley is offline
Junior Member
 
Join Date: Sep 2007
Location: Maine
Posts: 17
15 yr Member
Janet Kelley Janet Kelley is offline
Junior Member
 
Join Date: Sep 2007
Location: Maine
Posts: 17
15 yr Member
Mad Now What

Husband came in to MMC 13 days ago, crisis situation, did not have to ventilate, had 5 plasmspheresis - every other day - then two IVIG one day apart. Lungs looked abnormal, all tests (endoscopy) came back normal, no pneumonia, infection, bateria, or cancer. Barium swallow test yesterday they saw aspiration, did again today w/many docs and looked normal. Still very weak, 4.5 of oxygen through bypap machine. On mestinon, prendisone, cyclosporine, etc., etc., Anyone else been there?????? We seem to be at the end of our ropes here!!! Very frustrating.
Janet Kelley is offline   Reply With QuoteReply With Quote
 


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off



All times are GMT -5. The time now is 02:27 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.