I am newly diagnosed, I have had double vision like twice, does this usually get worse as the disease wears on? Does generalized MG mean you are getting worse?

So I had my Thymus removed 5/1/09, and it wasn't fun but i am not fully back to work and pretty much back to normal. However this last week my symptoms have been really bad, especially my vision. I was just stepped down from 35 to 30mg of Prednisone by my nero. I am also on 500mg CellCept 2x's a day, 4-5 60mg Mestinon a day, and MultiVitamins.
This week I have had really bad double vision, and been pretty symptomatic all week. I must say its pretty sad to go through the pain of surgery and see no short term benefit from it!! I am thinking of getting another round of IVIG, but I dont know if I can take the time off work to do it. Is there any other treatment schedules besides the 5 visits in a week plan? Thanks!

Regards,

John

i had dvision luckily longer distance like driving and walking. have you ever tried a patch -i was ok driving if i closed 1 eye. not the safest but when it was constant it worked until i started on meds. good luck!!!

John,
I have double vision also, ALL the time, I find if I tilt my head to the side it helps a lot. I was also a computer programmer years ago but with my vision problem I gave it up. I now can do just about anything because I have trained myself, so to me it is like single vision, once you live long enough with it you become adjusted {30 years} . I hope yours eases up soon.

Forgot to mention that I did get a call from my Neuro on Thursday, apparently my white count is a bit elevated. I went in for a urine test, and will be going in for another blood test next week. Not sure if that is relevant, but fgured I would include it in the intrests of full disclosure. Thanks!

Regards,

John

I read a couple of posts that mentioned prism's help and I am is the process of investgating. Going to a Neuro-Opthamologist is a few weeks (not a regular opthamologist)

I am in the same boat as you. Double vision is bad. Work involves computer a lot and I generally like to watch TV. I have been using a patch at home. While driving I blacked out one of the lenses on sunglasses w/ electrical tape so I dont have to run around looking like a pirate.

Always wear my sunglasses outside and rest my eyes as often as possible.

Looking from Neuro-Optha something that will cut the glare down and possible prisms. I noticed something interesting with a test I conducted. Take your hands and make let like binoculars (i guess you could use two toilet paper rolls too) It seems like when I block my peripheral vision that i have no double vision. Not that you can walk around with toilet paper rolls attached to you gead but just an observation. When I tunnel my vision it seems to help though. May looks for sunglasses that block the sides.

Anyway, go check with a Neuro Optha - I am!