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Finally! A plan!

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Old 02-17-2009, 03:12 PM #1
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erinhermes erinhermes is offline
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Thumbs up Finally! A plan!
Saw my neuro today! He kept me @ 60 mgs for a while - doesn't want to risk another "crash" but wants me to have IV IG every month for several months! Finally! A real plan! I was tired of crashing and having to stay in the hospital!

Next month I go down to 50 and then after another round of IV IG - 45 and so on.........

The funny thing is that @ the beginning, I was so scared of needles that I would cry and cry every time they placed the line, and now I "volunteer" to pull the line - just to irritate the nurses......

I go in 2 weeks from today to start another round.

I feel like we are finally getting somewhere!

Erin
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"Thanks for this!" says:
Jane1 (10-07-2016)
Old 02-17-2009, 04:44 PM #2
Gdbyrd Gdbyrd is offline
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That's AWESOME! Glad to hear you are going to get things to work for you!
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"Thanks for this!" says:
erinhermes (02-17-2009)
Old 02-18-2009, 12:24 AM #3
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Default Wow!
Hi Erin,

How Awesome!

I'm so glad your neuro has a plan for you! That has to be a relief to feel like you have an idea of what to expect.

I hope you're feeling good tonight.

Kristie


Quote:
Originally Posted by erinhermes View Post
Saw my neuro today! He kept me @ 60 mgs for a while - doesn't want to risk another "crash" but wants me to have IV IG every month for several months! Finally! A real plan! I was tired of crashing and having to stay in the hospital!

Next month I go down to 50 and then after another round of IV IG - 45 and so on.........

The funny thing is that @ the beginning, I was so scared of needles that I would cry and cry every time they placed the line, and now I "volunteer" to pull the line - just to irritate the nurses......

I go in 2 weeks from today to start another round.

I feel like we are finally getting somewhere!

Erin
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Old 02-18-2009, 03:40 PM #4
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Thumbs up Feeling SASSY!
I am feeling awesome today! I am sooooo happy there is an actual "plan" in place now...........

I was able to work and feel pretty great about that as well..........

09 is gonna be good!

Erin
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Originally Posted by nemsmom View Post
Hi Erin,

How Awesome!

I'm so glad your neuro has a plan for you! That has to be a relief to feel like you have an idea of what to expect.

I hope you're feeling good tonight.

Kristie
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