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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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Saw my neuro today! He kept me @ 60 mgs for a while - doesn't want to risk another "crash" but wants me to have IV IG every month for several months! Finally! A real plan! I was tired of crashing and having to stay in the hospital!
Next month I go down to 50 and then after another round of IV IG - 45 and so on......... ![]() The funny thing is that @ the beginning, I was so scared of needles that I would cry and cry every time they placed the line, and now I "volunteer" to pull the line - just to irritate the nurses...... ![]() I go in 2 weeks from today to start another round. ![]() I feel like we are finally getting somewhere! ![]() ![]()
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Erin . |
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"Thanks for this!" says: | Jane1 (10-07-2016) |
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