Home Menu

Site Navigation



Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS.


advertisement
NeuroTalk Support Groups > > >

Finally! A plan!

Reply
 
Thread Tools Display Modes
Old 02-17-2009, 03:12 PM #1
erinhermes's Avatar
erinhermes erinhermes is offline
Senior Member
  
Join Date: Jul 2008
Location: San Antonio
Posts: 1,471
15 yr Member
erinhermes erinhermes is offline
Senior Member
erinhermes's Avatar
 
Join Date: Jul 2008
Location: San Antonio
Posts: 1,471
15 yr Member
Thumbs up Finally! A plan!
Saw my neuro today! He kept me @ 60 mgs for a while - doesn't want to risk another "crash" but wants me to have IV IG every month for several months! Finally! A real plan! I was tired of crashing and having to stay in the hospital!

Next month I go down to 50 and then after another round of IV IG - 45 and so on.........

The funny thing is that @ the beginning, I was so scared of needles that I would cry and cry every time they placed the line, and now I "volunteer" to pull the line - just to irritate the nurses......

I go in 2 weeks from today to start another round.

I feel like we are finally getting somewhere!

Erin
__________________
Erin
.
erinhermes is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Jane1 (10-07-2016)

advertisement
Old 02-17-2009, 04:44 PM #2
Gdbyrd Gdbyrd is offline
Junior Member
  
Join Date: Feb 2009
Posts: 28
15 yr Member
Gdbyrd Gdbyrd is offline
Junior Member
 
Join Date: Feb 2009
Posts: 28
15 yr Member
Default
That's AWESOME! Glad to hear you are going to get things to work for you!
Gdbyrd is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
erinhermes (02-17-2009)
Old 02-18-2009, 12:24 AM #3
nemsmom nemsmom is offline
Member
  
Join Date: Feb 2009
Location: Oregon Coast
Posts: 503
15 yr Member
nemsmom nemsmom is offline
Member
 
Join Date: Feb 2009
Location: Oregon Coast
Posts: 503
15 yr Member
Default Wow!
Hi Erin,

How Awesome!

I'm so glad your neuro has a plan for you! That has to be a relief to feel like you have an idea of what to expect.

I hope you're feeling good tonight.

Kristie


Quote:
Originally Posted by erinhermes View Post
Saw my neuro today! He kept me @ 60 mgs for a while - doesn't want to risk another "crash" but wants me to have IV IG every month for several months! Finally! A real plan! I was tired of crashing and having to stay in the hospital!

Next month I go down to 50 and then after another round of IV IG - 45 and so on.........

The funny thing is that @ the beginning, I was so scared of needles that I would cry and cry every time they placed the line, and now I "volunteer" to pull the line - just to irritate the nurses......

I go in 2 weeks from today to start another round.

I feel like we are finally getting somewhere!

Erin
nemsmom is offline   Reply With QuoteReply With Quote
Old 02-18-2009, 03:40 PM #4
erinhermes's Avatar
erinhermes erinhermes is offline
Senior Member
  
Join Date: Jul 2008
Location: San Antonio
Posts: 1,471
15 yr Member
erinhermes erinhermes is offline
Senior Member
erinhermes's Avatar
 
Join Date: Jul 2008
Location: San Antonio
Posts: 1,471
15 yr Member
Thumbs up Feeling SASSY!
I am feeling awesome today! I am sooooo happy there is an actual "plan" in place now...........

I was able to work and feel pretty great about that as well..........

09 is gonna be good!

Erin
Quote:
Originally Posted by nemsmom View Post
Hi Erin,

How Awesome!

I'm so glad your neuro has a plan for you! That has to be a relief to feel like you have an idea of what to expect.

I hope you're feeling good tonight.

Kristie
__________________
Erin
.
erinhermes is offline   Reply With QuoteReply With Quote
Reply

« Previous Thread | Next Thread »

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts
BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Similar Threads
Thread Thread Starter Forum Replies Last Post
Finally, a dx....Not MS seara Multiple Sclerosis 24 01-24-2009 01:36 AM
Finally !! Wren On the Lighter Side 7 02-21-2008 03:32 PM
I finally did it..... Snoopy Multiple Sclerosis 37 07-15-2007 09:52 PM
Finally... toyL Parkinson's Disease 2 10-07-2006 06:19 PM
Wow Finally got on! DiMarie Thoracic Outlet Syndrome 19 08-25-2006 12:04 PM


All times are GMT -5. The time now is 07:37 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

All posts copyright their original authors.

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.

Always consult your doctor before trying anything you read here.

Home