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| Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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02-25-2009, 12:54 AM
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I felt better after a few days - BUT I was also on IV IG at the same time. It was during my last real crisis, so I was on roids, mestinon and had that IV IG flowing into my veins as fast at they could give it to me........
I was started @ 10 mgs, doubled to 20 the 2nd day and by the 8th day I was at 80 mgs - @ 80 I felt GREAT! Sounds like your neuro has things backwards........ I was told by my onc and neuro that steroids can initially cause pretty serious weakness - especially in the legs - learned that the hard way - got stuck - and that's why I was started on everything while still on the hospital......... Hope you get some relief soon!  Erin Quote:
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Erin . |
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Hello Becky!
Anyone who is on prednisone - how long after your initial dose was it before you felt some relief from weakness? My Neuro has me all confused because Thursday he had me start a short round and said if I felt relief from the large dose, then got worse as it tapered down to a really minimal dose (5 day dosage) he would be more comfy with my diagnosis. He said to call in 5 days, which I did, and let him know. I took the larger dose of a grand total of 24 mg Thursday night and Fri morn woke feeling some relief and jittery - then with the 8mg + 4mg +4mg on Friday, was able to walk fairly well - today on a measly 4 mg this a.m. and no more until tonight, I am weakening again. Told him this and he said it doesn't work that way????
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