Hello! Would you mind answering a question for me? It sounds like we are similar in that our problems center on breathing and fatigue issues, and some eye issues. I'm trying to get my mind around all this because when I read the books and some articles by neuros I get a totally different idea of mg. Like Annie said earlier, the pictures are extreme of people who can't hold their arms up at all after 45 seconds or are having to hold their jaws closed with their hands while their eyelids are almost completely closed up.

Okay so here's my question: Do you present with muscle weakness that shows up in a normal neurological exam? When the neuro asks you to hold up your arms for 30 seconds do they begin to fall? Mine will shake - maybe - depending on how much I've used the muscle in the last 24 hours. If I do a yoga pose, yeah, they're going to shake. (I've had this disease long enough to know better than to try to do a yoga pose! I'll pay and pay and pay for that in the next couple of days.) But, I can still hold my arms up, they won't fall. Usually after a 5 minute exam I'm out of breath, but none of my muscles have failed.

I found some muscle tests in one of the books I read and some of them I absolutely cannot do, but the neuros I've seen never go beyond the basic neuro exam. Things I cannot do are: lying flat lift up head and look at toes for 120 seconds, in same position do head lifts 20 x, deep knee bends 20 X. Others, like lift leg 45% for 100 seconds while lying down are extremely painful but I can make myself do them.

Any thoughts? Sometimes I think I have this figured out. Sometimes I think I've got it all wrong. So it would be invaluable to me if I can hear how other people respond.

Thank you for your help!!!!!!!!!!

Ally