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| Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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05-11-2009, 09:17 PM
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You sure have a GREAT idea! You know how other "minority" groups get together to share stories and such? What about a neurotalk MG group?
Just the thought of it excites me! No one to get offended when you get tired, no one to stare @ PICC lines or puffy faces - absolute bliss!  I KNOW you have answered this b/4 but you know how bad brain fog is with MG - how long have you had it? You just know soooooo much about MG that I was wondering.......... I have no energy today @ all.........but Mike was home after his back stuff so we hung out all day - so much fun! I love being married to my best friend! My dogs can sense I am tired and haven't left my side all day long - you should see how cute and gentle my "little" pit-bull is with me when I'm tired........I never thought I would own one, but she was a rescue and is so smart! I would love to get together when you come down to Texas.........You won't want to come during the summer though....too darn hot! I am planning on setting up a home office, because the thought of even leaving my house when it is above 100 degrees is just too much! Big hugs! Erin
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Erin . |
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05-12-2009, 04:21 PM
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#22 | ||
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Hi Erin,
I had a preliminary dx in 1997, the "for sure" dx in 2003, but of course now they want to reconfirm it! I have no question, have had symptoms since way before 1997 even, and especially after being on this forum and comparing notes with everyone. Check the new thread I'm starting soon - Good news for me and maybe a direction to look for others with overlaps! Talk to you soon.
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Becky |
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05-14-2009, 10:52 AM
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Junior Member
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I am very curious about your efforts to get on disability. It is looking more and more like I might have to go that route. Anything you can tell me would be a big help.
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