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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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07-08-2009, 08:47 PM | #1 | ||
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Junior Member
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i've been on 180 mg tr mestinon for 4 wks now full dose.i tapered up over 3 wks to this dose. i would like to know if patients can /do go higher and in what schedule. do you take extra smaller doses or just bigger q12 hr doses? i cannot take reg mestinon due to horrible muscle twitching even if i take 30 mg i get severe twitching which also makes tummy twitch until i vomit[sorry for the graphics] have a good sleep-it's 10 pm my time! time for all sickies to go to bed!!
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