Home Menu

Site Navigation



Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS.

NeuroTalk Support Groups > > >

One more thing to give up

Reply
 
Thread Tools Display Modes
Old 06-02-2009, 01:09 PM #1
GI6607 GI6607 is offline
Junior Member
  
Join Date: Mar 2008
Posts: 52
15 yr Member
GI6607 GI6607 is offline
Junior Member
 
Join Date: Mar 2008
Posts: 52
15 yr Member
Default One more thing to give up
How embarrassing! I was asked to play bass horn in a brass quintet playing live music for the local high school music teacher's son's wedding. Halfway through the service, during a prayer, I suddenly choked and could not get my breath back. I was so embarrassed I did not attend the reception. I don't think I can take that chance again so my performing days in small groups has probably come to an end.
GI6607 is offline   Reply With QuoteReply With Quote
Old 06-02-2009, 03:52 PM #2
erinhermes's Avatar
erinhermes erinhermes is offline
Senior Member
  
Join Date: Jul 2008
Location: San Antonio
Posts: 1,471
15 yr Member
erinhermes erinhermes is offline
Senior Member
erinhermes's Avatar
 
Join Date: Jul 2008
Location: San Antonio
Posts: 1,471
15 yr Member
Smile Only for a while.........
Hi GI6607! You may have to give it up for a while.....but hang in there!

Once your meds kick in, you are gonna be amazed! You will feel so great!

Before I was dx'ed I was too weak to even swallow - now (with help from my meds) I am able to go out and sing for hours - hours! Not so great for everyone else, cuz' I am tone deaf, but feels so good to me!

There will be rough patches. There will be days when you feel weak. Then ther are going to be days when you feel so great that you almost forget you have MG! Trust me! I promise you that!

Big, big hugs!
Erin



Quote:
Originally Posted by GI6607 View Post
How embarrassing! I was asked to play bass horn in a brass quintet playing live music for the local high school music teacher's son's wedding. Halfway through the service, during a prayer, I suddenly choked and could not get my breath back. I was so embarrassed I did not attend the reception. I don't think I can take that chance again so my performing days in small groups has probably come to an end.
__________________
Erin
.
erinhermes is offline   Reply With QuoteReply With Quote
Old 06-02-2009, 04:42 PM #3
Nicknerd's Avatar
Nicknerd Nicknerd is offline
Member
  
Join Date: May 2009
Location: Toronto, Canada
Posts: 547
15 yr Member
Nicknerd Nicknerd is offline
Member
Nicknerd's Avatar
 
Join Date: May 2009
Location: Toronto, Canada
Posts: 547
15 yr Member
Smile re. hobbies
I know what you mean...I've been singing since I was 12, and I no longer have the breath or enunciation to do it well...Also have been playing guitar, but fingers/wrists are weak....Here's hoping Eric's right, which I think she probably is!
Nicknerd is offline   Reply With QuoteReply With Quote
Old 06-02-2009, 11:44 PM #4
redtail's Avatar
redtail redtail is offline
Member
  
Join Date: Jun 2007
Location: western australia
Posts: 894
15 yr Member
redtail redtail is offline
Member
redtail's Avatar
 
Join Date: Jun 2007
Location: western australia
Posts: 894
15 yr Member
Default
How frustrating for you. Its always so hard when you find something that you cant do because of the mg.......................
__________________


Outside of a dog, a book is a man's best friend.
Inside of a dog, it's too dark to read.
Groucho Marx
redtail is offline   Reply With QuoteReply With Quote
Old 06-04-2009, 12:56 PM #5
Pat 110 Pat 110 is offline
Member
  
Join Date: May 2009
Posts: 586
15 yr Member
Pat 110 Pat 110 is offline
Member
 
Join Date: May 2009
Posts: 586
15 yr Member
Default
Hi GI,

I'm so sorry that happened to you, but it will only be temporary...just intill you are stronger again which may not be too long. I believe you will playing your horn again in the near future. Hang in there and we're pulling for you!

Take care,
Pat
Pat 110 is offline   Reply With QuoteReply With Quote
Reply

« Previous Thread | Next Thread »
Thread Tools
Display Modes
Linear Mode Linear Mode

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts
BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Similar Threads
Thread Thread Starter Forum Replies Last Post
Another fun thing braingonebad Social Chat 0 03-16-2008 05:45 PM
New thing to try? Tootsie Social Chat 5 03-12-2008 02:19 PM
And ANOTHER thing I don't like about MS Blessings2You Multiple Sclerosis 10 03-11-2008 06:13 PM
Ruling may unlock key data on doctors...A Good Thing or a Bad Thing? Stitcher Parkinson's Disease 0 08-31-2007 06:54 PM
What is the Thanks thing? Nikko Bipolar Disorder 2 02-04-2007 12:41 PM


All times are GMT -5. The time now is 12:46 PM.


Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

All posts copyright their original authors.

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.

Always consult your doctor before trying anything you read here.

Home