Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS.


advertisement
Reply
 
Thread Tools Display Modes
Old 06-24-2009, 01:25 PM #31
ss822 ss822 is offline
Junior Member
 
Join Date: Jun 2009
Posts: 7
10 yr Member
ss822 ss822 is offline
Junior Member
 
Join Date: Jun 2009
Posts: 7
10 yr Member
Default facial features

Quote:
Originally Posted by rach73 View Post
Hi Erin and anyone else that wants to join in!

I was reading some old posts- the cricket is on and Im feigning interest to keep the peace!

I read Erin that your face froze, I was wondering if I tell you my symptoms when mine did it if you could tell me if yours was like that? Does that make sense? sorry if it doesn't Im shattered and I should really be in bed doing this not sat on the recliner!

On Monday 1st of June I was doing my usual, pushing myself to the limit cleaning and messing about. It was very hot hottest day of the year so far.

My face felt funny, stiff like it wasn't moving properly. I tried to whistle couldn't make the shape with my mouth, tried to smile made a face that would scare small children! Over the next four hours my face became frozen. The corners of my mouth turned down and I had to talk through gritted teeth. I went to hospital where they did b***er all. After 12 hours it wore off. In those 12 hours all I did was lie still on a bed, no talking, no watching tv or listening to the radio. Did yours do something similar?

Thanks
Rach
sometime my eyes twitch so much that i know that people cant see it but i cant stand it - i also find that when i take a picture and even if i am smiling it always looks as if i am sad - i find when i sleep or even wear sunglasses in the house so my eyes are not so sensitive it feels a little better
ss822 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
rach73 (06-24-2009)

advertisement
Old 06-24-2009, 05:32 PM #32
erinhermes's Avatar
erinhermes erinhermes is offline
Senior Member
 
Join Date: Jul 2008
Location: San Antonio
Posts: 1,471
15 yr Member
erinhermes erinhermes is offline
Senior Member
erinhermes's Avatar
 
Join Date: Jul 2008
Location: San Antonio
Posts: 1,471
15 yr Member
Smile Hi ss822!

Hi ss822! Have you been dx'ed with MG? It sounds like your face may be freezing up as well! I look @ old pics b/4 my dx - and I always looked upset -even though I was happy! It crept up on me so slowly that I wasn't even able to realize it until I wasn't able to kiss my son or hubby!

Ice packs are great for when your eyes need a break. They help quite a bit!

When you have some time, I'd love to hear more about your MG!

Erin










Quote:
Originally Posted by ss822 View Post
sometime my eyes twitch so much that i know that people cant see it but i cant stand it - i also find that when i take a picture and even if i am smiling it always looks as if i am sad - i find when i sleep or even wear sunglasses in the house so my eyes are not so sensitive it feels a little better
__________________
Erin
.
erinhermes is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Gait Freezing Fowki Parkinson's Disease 1 04-27-2009 04:27 PM
? about freezing mushrooms Lara Food Court 3 01-27-2009 06:46 PM
Freezing to death Silverlady Peripheral Neuropathy 28 09-16-2006 03:17 PM


All times are GMT -5. The time now is 07:43 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.