Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS.

 
 
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Old 08-01-2009, 06:31 AM #21
whirlwind123 whirlwind123 is offline
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Join Date: Apr 2009
Location: ohio
Posts: 160
15 yr Member
whirlwind123 whirlwind123 is offline
Member
 
Join Date: Apr 2009
Location: ohio
Posts: 160
15 yr Member
Default Hi Kathy

My mg started like yours but it took about 8 months for someone to diagnose because I had the bluriness and double vision but no drooping. They did the blood work and I was positive, I am waiting now for a appointment with the MG specialist, I went to one local Neuro, and he has first put me on mestinon which I had some bad effects to and then he changed me to the prednisone., which really didn't help my vision and the side effects outweighed the symptoms. How are you doing on the prednisone? When I go back to specialist I have been waiting 4 months for., I am going to ask him about a prescription for the brand mestinon I have been told that sometimes the generic will give people more side effects.
Glad to hear you are doing so welll, I do was hesitant to post as my symptoms compared to what everyone else is going thru is mild. I started my mg at 57 years old. This is a wonderful board., they have helped me tremendously.
Take care
Nancy
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