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| Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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| Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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07-27-2009, 08:42 AM
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No Ach antibodies my go between doc says that this means I do not have myasthenia gravis. And we'll have to wait to see neuro to find out what is going on. And to stop mestinon..... Maybe everything is fine. keeping my fingers crossed.
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07-27-2009, 09:37 AM
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Sometimes the tests come back neg. Does the mestinon work? if it does then I would ask my Dr. if I could keep taking it.
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07-27-2009, 10:19 AM
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Hi,
my bloods are negative too, but mestinon is the only thing that lets me function on a somewhat limited level. If you find you are worse off the mestinon it maybe worthwhile talking about staying on it. If you have problems with your breathing when you stop taking the mestinon call 911 or 999, depending on what country you are in! Good luck Rach |
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07-27-2009, 11:35 AM
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The mestinon makes my eye and face better. Everything else I keep wondering if maybe it's just all in my head. Maybe I just think it's better. That's the honest truth. I just don't know what to think.
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07-27-2009, 11:50 AM
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Yes, the bloodwork can come back negative & you still have MG...mine was all negative, but the Mestinon does help some, & my repetitive EMG was decremental so that's what my dx is based on....Read Dr Angela Vincent's article....she is doing research on this & states that negative BW does not mean no MG....I don't have the link, but maybe someone can lead you to it here on the forum, or the search engine may find it for you...copy it & give it to your dr....HTH...good luck....
Dottie |
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07-27-2009, 12:06 PM
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Cooley, If the double vision is better when you take the mestinon, you should ask your Dr. to allow you to stay on it. Your neuro appt. isn't until Oct. and you shouldn't have to suffer in the meantime. I am sure this is so frustrating for you, but hang in there, we are all pulling for you. Take care.
 Hugs, Pat |
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