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| Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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08-02-2009, 09:28 AM
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Member
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Hi,
I've just spoken to my parents and my dad has said they will take me to France, basically I think he'd be clueless with a new born baby LOL! Ok, my brain is not working Im not very well today my eyes are struggling to follow things, can't watch TV etc so this will be very short. I need suggestions on what to put in my opening e-mail to the professor. Any suggestions appreciated as Im drawing a blank here! Thank you all so much for your help, and Maurice I will be taking you up on the offer to translate as I will send an English and French version to be polite. I hope thats still ok? Thanks Rach x 
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08-02-2009, 04:49 PM
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Grand Magnate
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Rach, I think keeping it as short and brief and formal as possible is the best way to go. Don't offer up a lot of details. Just say that you would like a second opinion on your condition, which consists of fatigable ptosis, generalized weakness, oxygen stats dropping into the 80's, etc. And then ask if they can see you and do testing to figure it out.
Really, you don't have to say any more than that. Let the doctor take the lead. You'll probably get a response within 24 hours. Annie |
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08-02-2009, 07:41 PM
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Senior Member
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Hi sweetheart! I am sooooo happy for you! Finally, a light @ the end of the tunnel!
 I just KNOW you are going to find the right dr and get diagnosed with MG! Whoo-hoo! I am so happy for you, sweetheart!  Big hugs! Erin Quote:
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Erin . |
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08-06-2009, 05:15 AM
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Just to let you know that we have sent the email to france today.Once we hear something we will let you know.
Thanks to everyone for their help. Love Rach x |
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08-06-2009, 11:10 PM
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Member
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Hi Rach,
glad to hear the email is on its way, hope everything goes the way you want it to. Kate
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Outside of a dog, a book is a man's best friend. Inside of a dog, it's too dark to read. Groucho Marx |
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08-07-2009, 07:33 AM
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Excellent! Hope you hear something soon about getting an appointment.
Sue |
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08-07-2009, 08:53 AM
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Terrific! Hope you get a positive reply soon. Take care and hang in there.
 Hugs, Pat |
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08-07-2009, 10:02 AM
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That's great, Rach! I hope that the docs. in France can call it what it is, and you at least don't have to worry about having a shroud of mystery around the nature of your ailment on top of having to deal with the everyday irritating symptoms!
Let us know how things go, and let's hope that you can get some better treatment! Nicky
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08-07-2009, 10:41 PM
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Rach,
Hope all goes smoothly now for you. Keep in touch. Hugs, Simon |
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help composing e-mail
Hi Rach!
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