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Old 03-22-2010, 09:53 AM #5
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vini vini is offline
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vini vini is offline
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Join Date: Aug 2008
Location: some were over the rainbow
Posts: 552
15 yr Member
Default welcome jackie

Quote:
Originally Posted by jackie fox View Post
Hii
I am a mother who is watching her 40-year-old son suffer from a spinal leak after ssurgery for "spinal stinosis." He seems like he has just exchanged one type of pain for another. Can't eat or drink , only a very little. has had projectile vomiting and is really sensitive to slightest light or sound. Had a blood patch three days ago. and had some relief at first but is slowly getting back to the same severe headache, plus severe leg pain that is supposed to be from "nerve damage." A few days after rsurgery, we took him to hospital emergency room where we were told "we can't do anything for him that you cant do at home. Why are they so afraid to give him pain relief meds? Seems to me any possible addiction wouldn't be likely when a person is suffering so much??Anything that will help that we as family can do for him??
Jackie
hello jackie

blood patches do not always work it is real important to lay flat and no exertion for a long time after the patch if you are in the USA I can recommend a doctors / surgeons who are specialists in this field

please see link to post http://neurotalk.psychcentral.com/thread59605.html

orthostatic headaches due to csf leaks can be helped by laying flat, dose this help ? fluid intake is important to try to keep it to normal levels

your surgeon should have used duraseal or similar http://www.durasealinfo.com/imageSer...pplication/pdf

above all I would recommend talking with the surgeon asap I have had a intermittent skull leak for over two years once a fistula has formed in my opinion they are harder to fix
best wishes
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Last edited by vini; 03-22-2010 at 10:12 AM.
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