Do you think he is losing weight mostly because of the mouth sores, or a cumulative of everything?

Are they looking at rare diseases? or combination of diseases?

I am guessing they checked for Lyme & Chronic fatigue syndrome??

I know a rare disease called Pemphigus Vulgaris will cause mouth sores and cause severe weight loss. It is autoimmune , but rare.
Just mentioning it as I knew someone who had it-
info-
http://www.google.com/search?q=Pemph...ient=firefox-a

Have you considered Homeopathic/Naturopathic dr?

If the MDs can't figure it out maybe try an expert in alternative care?


Have any special mouth rinses for the sores been tried??

Welcome to you both

so sorry he has not been diagnosed yet. not knowing can be really frustrating.

I would look to alternative medicines at this point. knowing that he does not have many dreaded diseases is a plus, but sounds pretty devasting to him if he's going downhill right now.

I would inspect his environment a little closer. Maybe even move him out of his room into a more sterilized setting.

Right now, I'm looking into trying catcus juice, to rid the body of impurities and inflammatories. All natural and from mother earth.
Here is the link http://www.sonorancactusjuice.com/

I sure hope you find some answers soon and he starts his road to recovery.

Congratulations on completing high school. That is commendable.

See ya around.

Welcome to this truly wonderful community! I am so very, very sorry why you found us and I feel so badly for what your son is going through. His pain and frustration must be so high; I hope he gets great pleasure and that feeling of true accomplishment from his graduation. To achieve that while going through his medical challenge is really worth admiration and great praise!

I am certainly not qualified in any medical capacity, whatsoever, and please do not take this as more than just my thoughts. Something immediately leaped out to me from my own recent experience as I read his symptoms, types of specialists seen, drugs used, the results that ruled things out without finding the real problem.

Might your son have slipped into the effects of malnutrition caused by what the doctors are looking for? Even though I presented all the classic malnutrition symptoms at every later Dr appointment (significant weight loss/weight not near the low-end for height, mouth sores, severe pain that was more pronounced in joints, fairly sudden inability to walk), they didn't 'see' it. They continued the search for some disease, while its by-product was overpowering the real problem and doing great harm.

Again, all just simply thoughts. Maybe a complete, current blood panel on all vitamin, protein, sodium, hydration, and other indicators of moderate/significant nutrition? A person will get to the point where they simply do not want to eat from fatigue, alone.

I know you will find support, hope, and pointers here. It is truly full of great folks who will, at bare minimum, give you tremendous emotional support.