Hello everyone, I have been diagnosed with TOS since 2006 due to a Motorcycle Accident in 2002. Yes it took four years but I finally found a Doctor who would listen and knew what was wrong and treat me. I have my good days and my bad days as you all know but the worst day for me came last month when I found out that my Doctor (Allen J. Togut) is retiring this year. I live in a rural area in Pennsylvania where Doctors with expertise in TOS are slim to none unless you willing to travel like I have too. I am looking for anyone else here with the same problem and if so do you have any recommendations finding a new Doctor. Thanks:

Hi

Welcome to NT

So sorry you have TOS. It took me over four years to find a good, knowledgable doctor to treat my TOS and related conditions and unrelated conditions.

There is a TOS member in PA. Here is her link. http://neurotalk.psychcentral.com/member.php?u=99

She may be able to help you.

Louisville, KY is not that far away. Dr. Atasoy is wonderful, but I haven't checked or been back in several years now, he may be retiring also. He's great. Would recommend him highly for TOS.

Hope you find a good provider close to you. You first have to determine what your future treatment needs will be. There's always tweaking to be done.

You're not alone here. We do understand and may have lots of helpful things to try.

Thanks for the reply and for the information. Seems like four years to find a Doctor willing to listen and treat is the norm.

Hello and welcome to NeuroTalk. Happy to see you have come to be with us. Just let us know if we can be of any help.

There are great number and caring fellow members here to assist you. Our shoulders are here for support in many ways.

Again welcome, looking forward to seeing you around. My thoughts and prayers are with you.

Darlene

Hello to you and Thanks:

hi dr and welcome to NT.

i'm sorry i can't offer any other information but i just wanted to say hello.

there are many forums here so look around and i'm sure you'll find some that will help you.

Welcome to the forums.

I hope you locate a good new doctor. I sure understand the need.

Sending good thoughts from the snowy area I live in.

Donna

Hello to both of you and thanks. I have a month so hopefully I will be successful in my search.

I had a minor case of TOS after a double mastectomy. With PT, and other exercises I found it greatly improved. I havent had much issue with it, but have great sympathy for those that struggle with it. Thorasic outlet syndrome is quite awful if you cant find some relief.

I would stand just before a door way. place my hands on the jam (palms at shoulder level) and lean into the doorway. Feel all those muscles and vessels open up. dont push, just lean, allow a nice long stretch. put hands up higher or lower for a wider area of stretch. Felt so good after being tight for so long.

I hope you feel better.

Thanks for reply and information.