[d. scarlet]

Greetings. is there anyone out there with erythomyalgia? I am 52 years old and began having major vascular problems when I was 33. I have had double leg fasciotomies, several femoral artery replacements, open heart surgery, abdominal aorta replacement... all in all 20 surgeries. ON top of all that I was recently diagnosed with erythomyalgia. It is currently in my right foot. THere is no describing the severity of the pain. The best I can say is it is like taking a knife that has been sitting in a fire stabbing it into your foot and twisting. THankfully it isn't like that constantly but it hits in waves sometimes lasting a minute or two and sometimes several hours. Nothing I've been prescribed so far works.

Please! is there someone with advice? I absolutely cannot live like this.

[Alffe]

Hi d scarlet and welcome to NeuroTalk. I had to google eruthomyalgia as I'm not familiar with it...http://emedicine.medscape.com/article/200071-overview

Here is the link to our Rare Disorders forum...http://neurotalk.psychcentral.com/forum2.html

You might try posting there. I'm glad you've joined us but sorry for the reason...sounds very painful!

[(Broken Wings)]

Welcome to NT

Oh, dear.

Sounds terrible to deal with 24/7.

So sorry you're having these problems. Here's some hugs for you

This is a great place to find information and support.

Do keep us posted.

[mrsD]

We have some posters with this at our PN forum:

http://neurotalk.psychcentral.com/forum20.html

[azoyizes]

Hi, and welcome to NT! This is such a great place with many friendly, caring, and helpful people.

We're so glad you found us!

[Darlene]

Hello and welcome to NeuroTalk. Happy to see you have come to be with us. Just let us know if we can be of any help.

There are great number and caring fellow members here to assist you. Our shoulders are here for support in many ways.

Again welcome, looking forward to seeing you around. My thoughts and prayers are with you.

Darlene