[MaryPoppy]

Good afternoon,

My 15 year old daughter is undergoing a spinal fusion operation in a little under two weeks. She was born prematurely and lives with cerebral palsy. About 5 years ago, she developed scoliosis and also lordosis. After 3 1/2 years of the idea of spinal fusion surgery being presented, she's decided to go ahead with this 12-15 hour operation.

As her parent, I need to support her, but am terrified inside at the idea of such an invasive operation and wonder if there are other parents out there who have had their children undergo such a procedure, and whether or not it was a success?

Thank you for listening,

Mary

[Abbie]

Hello MaryPoppy
and
WELCOME to NeuroTalk!

I'm sorry to hear of your daughter's struggles... she sounds so strong though I would be petrified if I were in your shoes.

Here are a couple of links that may be of interest to you.

Children's Health
http://neurotalk.psychcentral.com/forum9.html

Spinal Disorders & Back Pain
http://neurotalk.psychcentral.com/forum22.html

Please feel free to roam around and join in anywhere! Kick of your shoes have a seat and stay a while. You will find that we have a WONDERFUL group of very kind, caring, and understanding people here who share a wealth of knowledge and strong shoulders to lean on.

I look foward to seeing you around the board.

Abbie

[Darlene]

MaryPoppy,

Happy to see you have come to be with us. Just let us know if we can be of any help. There are great and caring friends here to assist you. Our shoulders are here for support in many ways. Please keep us up to date.

Again welcome, looking forward to seeing you around. My thoughts and prayers are with you.

Darlene

[gabbycakes]

Originally Posted by MaryPoppy

Good afternoon,

My 15 year old daughter is undergoing a spinal fusion operation in a little under two weeks. She was born prematurely and lives with cerebral palsy. About 5 years ago, she developed scoliosis and also lordosis. After 3 1/2 years of the idea of spinal fusion surgery being presented, she's decided to go ahead with this 12-15 hour operation.

As her parent, I need to support her, but am terrified inside at the idea of such an invasive operation and wonder if there are other parents out there who have had their children undergo such a procedure, and whether or not it was a success?

Thank you for listening,

Mary

Hi Mary,

It has to be scary as anything to have to think of your daughter having such a procedure. But on the positive side my husband, my boss and her husband have all had multiple spinal fusions all with good results.In all three cases the surgeries where performed in NYC 2 at the Hospital for Special Surgery and 3 at NYU - Center for Joint Disease. All 3 had top, top doctors in there field. Where is your daughter having her procedure? The best recovery I have seen is my bosses husband he had a fusion 6 weeks ago and they did an posterior and anterior type procedure, he is a older gentlemen about 62 and would you believe he's back at work PT already, driving and has done wonderful.

I'm sure others have directed you to the Spinal Section on this site it has great information and you might find someone who has gone through what you are. I wish your daughter the best and my prayers will be with her.

Keep us posted.

Gabbycakes

[Binkie]

Originally Posted by MaryPoppy

Good afternoon,

My 15 year old daughter is undergoing a spinal fusion operation in a little under two weeks. She was born prematurely and lives with cerebral palsy. About 5 years ago, she developed scoliosis and also lordosis. After 3 1/2 years of the idea of spinal fusion surgery being presented, she's decided to go ahead with this 12-15 hour operation.

As her parent, I need to support her, but am terrified inside at the idea of such an invasive operation and wonder if there are other parents out there who have had their children undergo such a procedure, and whether or not it was a success?

Thank you for listening,

Mary

Hi Mary, my name is Karen, very nice to meet you. I am sorry to hear your daughter has to go through all of this. Sometimes life just doesn't seem fair. If You ever need someone to talk to please email me. My son is 16 and thank God he is healthy, but he has some issues, that could lead to major health issues in the future.