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Old 06-15-2011, 09:26 AM #1
jasmine123 jasmine123 is offline
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i have one injection every ten weeks .my neuropathy is permenent ive been told to take folate to prevent it getting worse and pregabalin for treatment of pain and balance . im worried it will get worse as it appears to have got worse over the past few months at a rapid rate.
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Old 06-15-2011, 09:55 AM #2
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Lightbulb

You have every right to be worried.

At this point you are concerned and your options are to find a neurologist to evaluate you (another opinion), and perhaps do some homework on how pernicious anemia is treated.

The peripheral nervous system can regenerate. If your damage is to the spinal cord however, which occurs with very low B12 over a period of time, that may be permanent. (combined degeneration of the spinal cord is the name when this happens).

There are many sites on the net besides this one that explain pernicious anemia and its treatment:
Here is one example:
http://www.medicinenet.com/perniciou...e4.htm#treated

If yours is severe enough to cause permanent nerve damage, your injection every 10 weeks seems odd, as the typical injection protocol is once a month, after the loading dose period of frequent injections (some patients may need them more frequently). Injections are not always needed if one does high dose oral supplements, and does them correctly.
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Old 06-15-2011, 11:28 PM #3
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Wink Hello and Welcome to NeuroTalk!!


Happy to see you have come to be with us. Just let us know if we can be of any help. There are great and caring friends here to assist you. Our shoulders are here for support in many ways. Please keep us up to date on your condition & needs. Check in on the following links for assistance on peripheal neuropathy:

http://neurotalk.psychcentral.com/forum20.html

Again welcome, looking forward to seeing you around. My thoughts and prayers are with you.

Darlene
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