[Jerie]

My name is Jerie,
I am new to the forum. I noticed insecure was on this site. I had visited her web page and posted pictures and e-mailed her. So if you see this post go read your mail, lol!
I have not been diagnosed with RSD. I am sure I have it. It started after foot surgery. I had edema and venous insufficiency in my lower extremity. I have nerve pain that has spread from my right foot up my right side to Right shoulder. It quickly spread down to foot on left side and is now all over my body.
The edema and discoloration has improved, but nerve pain is interesting. It feels like I am having an allergic reaction without the rash. Burning on the surface of my skin. My surgery was in late may this year.
The VA did my surgery and refuse to let me see a neurologist until I have nerve conduction test. I want to see the neurologist first.
I got mad an made an appointment with my own neurologist but my appointment still won't be before the test. It's like the VA refuse to acknowledge I have RSD. It's 4 months now without seeing a neurologist. I decided to go back to the VA clinic just to ensure documentation of the change in symptoms (spreading of nerve pain) before my test they ordered.
Frustrated to say the least. Treated like a head case.
I look forward to investigating this condition more and hearing from you.

[Karen67]

Originally Posted by Jerie

My name is Jerie,
I am new to the forum. I noticed insecure was on this site. I had visited her web page and posted pictures and e-mailed her. So if you see this post go read your mail, lol!
I have not been diagnosed with RSD. I am sure I have it. It started after foot surgery. I had edema and venous insufficiency in my lower extremity. I have nerve pain that has spread from my right foot up my right side to Right shoulder. It quickly spread down to foot on left side and is now all over my body.
The edema and discoloration has improved, but nerve pain is interesting. It feels like I am having an allergic reaction without the rash. Burning on the surface of my skin. My surgery was in late may this year.
The VA did my surgery and refuse to let me see a neurologist until I have nerve conduction test. I want to see the neurologist first.
I got mad an made an appointment with my own neurologist but my appointment still won't be before the test. It's like the VA refuse to acknowledge I have RSD. It's 4 months now without seeing a neurologist. I decided to go back to the VA clinic just to ensure documentation of the change in symptoms (spreading of nerve pain) before my test they ordered.
Frustrated to say the least. Treated like a head case.
I look forward to investigating this condition more and hearing from you.

I am new here too. Everyone has been super nice and really helpful with advice. I had two knee surgeries this year, (Jan. then early March). My ortho doc and my PCP both ignored my on-going complaints about my feet being in horrific burning pain. I did get my PCP to listen to me but by then 6 months had passed. So I totally understand what you are going through. Are you getting much sleep? I am up every morning around 3:00am or so because my darn feet wake me up. And now it has spread to my ankles and hands. Try to stay positive if you can. There is always someone on here that knows what you are feeling and will talk with you! Karen

[Rrae]

Welcome to NT! You will find so many wonderful and caring people here. The RSD/CRPS forum is very active. Here's the link to get you there...

http://neurotalk.psychcentral.com/fo...aysprune=&f=21

I understand about being treated like a head case. Most people (even healthcare pro's) don't even know what this malady is and it's very frustrating. Hang in there, though, eventually someone will come across your path who will understand what you're going thru.

Just holler if you need help in finding your way around the forums

Caring
Rae

[Darlene]

Hello and welcome to NeuroTalk. Happy to see you have come to be with us. Just let us know if we can be of any help.

You will be able to meet some wonderful fellow member here for each other. Our shoulders are here for support in many ways.

Again welcome, looking forward to seeing you around, please keep us up to date. My thoughts and prayers are with you.

Darlene

[pupswillbepups]

I understand about being treated like a head case. Most people (even healthcare pro's) don't even know what this malady is and it's very frustrating. Hang in there, though, eventually someone will come across your path who will understand what you're going thru.

Just holler if you need help in finding your way around the forums

Caring
Rae

everyone in here is so caring! thanks so much!

Isn't this an awesome place? Already you've met some good & caring people--& it's just started. I hope you get on the forums, repost your intro post to start your own thread where lots more people who will understand what you're going through will have a chance to read your story.

Keep coming back, ask questions then ask more--till you run out (I like your attitude toward the nerve pain, "interesting," you will never give up!), & if you just need a non-judgmental ear, you'll find lots of those too. Come & let loose a good ol' anytime! (I love the emoticon, want one for my desk because it always makes me laugh.)

You take good care, Jerie.
C.G.