Originally Posted by janey1

Hi to all. I am posting from England (don't know if there are many of us here). My son aged 18 has been ill for 2 years now with supposedly hemiplegic migraine. This was diagnosed following a severe onset headache with stroke like features. However 2 years on he is still unwell, with daily excrutiating headaches on rising and moving, fluid leaking from his ear, balance & visual problems and ongoing left sided weakness. His neurologist gives him 3 monthly steroid injections which gives him some sort of qualify of life. We are at the point now where we need answers. He also has a connective tissue disorder called Ehlers-Danlos Syndrome.
Feel free to point us in the right direction for a diagnosis.
Many thanks
Janey x