Hi all. I was diagnosed with adult onset Leukodystrophy in September and have been looking for a place where I can chat with others, gain information and possibly help encourage others or family members like my dear wife who has to learn to live with my condition.

So far, while dealing with the physical challenges, I have had a great sense of liberation. I do not have to apologize for what I cannot control.

We always talk about living like it is your last day, but I have learned that until you face that as a real option you really don't know what it can mean. When I was younger I would have said, "Yeah, I'll go nuts with fun and a carefree attitide." Interesting, when doctors told my wife and me that I am in God's hands and all they can do is try to help me be as comfortable as possible and function as long as I can, it made me appreciate more what I have going for me. I, like you, am facing the eventual final day. For me it has made me want to do more for others and leave a positive memory.

Today is Thanksgiving. I never thought of it before but there is a differnce between being happy and being thankful. Happiness is passive, something happens to bring pleasure. Thankfulness requires personal investment and is active in nature. Thankful comes as the result of action. I am thankful.

I was really surprised and thankful for something my employer did the other day. He insisted he buy me a larger computer monitor and adjust lighting to make it more comfortable for me. I realize that employers have to make requested accomodations, but I would not have asked on my own. It is a great motivator.

How very VERY inspiring!

Welcome to NT!
Indeed you HAVE found a place of care and understanding
A place to share and a place full of good information.
The support here is wonderful.

There are several forums here that I know you'll benefit from greatly. Scroll thru the main index and post anywhere you may feel inclined.

I'm sorry for these struggles you are faced with.
I can plainly see that you are a fighter.

It's great to have you here!

Caring,
Rae

Hello and welcome to NeuroTalk. Happy to see you have come to be with us. Just let us know if we can be of any help.

There are great number and caring fellow members here, just let us know how we can assist, you will see we are are supportive and relaxing place. Our shoulders are here for support in many ways.

Again welcome, looking forward to seeing you around. My thoughts and prayers are with you.

Darlene

I can see that I will be learning from you LaMike. Not for the condition that you have, but rather your wisdom.

I am new, and I can see connections are inevitable. Take care. I will be re-visiting this thread.

Hello LaMike and WELCOME to NeuroTalk!

Please feel free to roam around the forums and join in anywhere!

Here is a link to one of our forums that just may be up your alley...

General Health Conditions & Rare Disorders
http://neurotalk.psychcentral.com/forum2.html

I look forward to seeing you around the board.

Abbie