Hi. My name is Michele. I am 44 years old and married to the man of my dreams that is very quickly getting very tired trying to take care of everything on his own, even though he will keep trucking along as we try to find out what is wrong with me. We have 5 beautiful children. All doing well except for our 12 year old baby that is rebelling to not having mom.

Mom is very tired and scared. Back in November, Mom was diagnosed with a fast growing Thyroid Tumor. Back to first person....I was having weird symptoms.... seeing things weird like the walls tilting, computer screen flipping upside down.... moving objects like the bathroom sink when i was brushing my teeth. The floor would move when I went to put my feet down on it.

So on to biopsy in December, Dr put 4th needle in on fine needle aspiration. He hit a nerve. That night I wet the bed. Never did that before. Two days later went to get results that were inconclusive. As I was walking out of office was my first drop in blood pressure down to 80/40 and I hit the ground. Face was pallor with cotton mouth. Squad was called but I just thought I was dehydrated and went home.

After this, I kept passing out with my bp dropping everytime I stood up to quickly. I ended up in the Cleveland Clinic and ended up with a diagnoses of Dysautonomia/Orthostatic Hypotension. I also have Hypoparathyroidism/Hyposcalcemia.

From here I am lost. I am so scared. When I walk, I am out of breath after 15 feet. I'm having palpitations. My joints hurt in my legs and fingers terribly. Is there any help for me?? Or is this my life from now on. If there is any one out there that can give me hope, please guide me. I do have a neuro appt with Dr. Shields at the Cleveland Clinic next week. I'm have been praying so hard.

Thank you and God Bless,
Michele

Michele

Hello and welcome to NeuroTalk. Happy to see you have come to be with us. Just let us know if we can be of any help.

There are great number and caring fellow members here, you will see we are supportive and relaxing place. Our shoulders are here for support in many ways.

Check into the following forum, there you should get some answers:

General Health Conditions & Rare Disorders:
http://neurotalk.psychcentral.com/forum2.html

Again welcome, looking forward to seeing you around. My thoughts and prayers are with you.

Darlene

Welcome.

Since you mention joint pain with these other autonomic symptoms, I would suggest you get worked up for autoimmune disease. The diagnosis process ahead can be long and frustrating. Find a good rheumatologist to do blood work, then go from there based upon the results. Keep in mind several AI diseases can be present even when blood work is negative (called sero-negative).

Do you have dry mouth or eyes? What about fatigue? The palpitations and SOB sound like more autonomic dysfunction. Have a cardiologist order a 24 hours holter monitor or 30 day event recorder so you can document these events.

The autoimmune forum is not very active here. But General Health & Rare conditions is more active.

Hi Michele and welcome NeuroTalk. Here is the link to our Autoimmune Forum http://neurotalk.psychcentral.com/forum44.html

And here is the link to our General Health and Rare Conditions Forum..http://neurotalk.psychcentral.com/forum2.html

I hope you can find some help at the Cleveland Clinic. I'm glad you've joined us.

Welcome to Neruo Talk. You will find alot of help on this site and maybe even a friend or two. I know you are frightened. The hospital your speak of has a fantastic reputation. I came to this site in a state of panick as well and know what you feel. I also have thyroid issues, and have had several biopsys. I am sorry to hear of the several different problems you have. Please try to relax just a bit. I have faith that this clinic will help normalize your life. There is alot of help for these conditions with the right intervention. I also know you have a family you need to take care of. They will have to be strong for you, and your husband while you go through all the evalutations. We will be here for you on NT also. Comfort goes a long way toward getting us through severe health issues. Neruo Talk was created for just this purpose. You and your family are not alone. I will continue to pray for your and your family. Keep in touch with us and know that I care about you. It will be OK, something good will happen with this facility. truely their reputation is good. I wish you all the best as you search for some answers. ginnie

Thank you so very much for your support. It does help to know there is somewhere to go where others understand.