[joesmum5]

Hi everyone we are new to the site as my Son has just been diagnosed with Chiari 1 with a syrinx. It was obviously a big shock as we had never heard of this condition before. Joe was born a Tof oa (Tracheo-Oesophageal Fistula) and had a repair done at 5 days old.
He has Asthma and has often suffered from Reflux, Choking episodes and wheezing and breathlessness at times, these are all symptoms of Tof but as I understand it are some symptoms of Chiari.
Joe has had a rotation head movement since he was a baby which was thought to be 'Tics' which is why he was MRI'd in the first place, if anyone has similar symptoms or storeys I would love to hear from you.

[MelodyL]

Originally Posted by joesmum5

Hi everyone we are new to the site as my Son has just been diagnosed with Chiari 1 with a syrinx. It was obviously a big shock as we had never heard of this condition before. Joe was born a Tof oa (Tracheo-Oesophageal Fistula) and had a repair done at 5 days old.
He has Asthma and has often suffered from Reflux, Choking episodes and wheezing and breathlessness at times, these are all symptoms of Tof but as I understand it are some symptoms of Chiari.
Joe has had a rotation head movement since he was a baby which was thought to be 'Tics' which is why he was MRI'd in the first place, if anyone has similar symptoms or storeys I would love to hear from you.

Hi there. Welcome.

Here is a link to our Chiari forum.

http://neurotalk.psychcentral.com/forum71.html

You'll find lots of new friends and get good info.

Best of luck

Melody

[Darlene]

joesmum,

Hello and welcome, happy to see you have come to be with us, it a great place to be. As you can see we have a great number and caring fellow members here, welcome to a supportive and relaxing place. Have fun looking into the different forums. Our shoulders are here for support in many ways. Take a look in the following forum:

Traumatic Brain Injury and Post Concussion Syndrome:
http://neurotalk.psychcentral.com/forum92.html

Looks as though you are finding you way around. Again welcome, looking forward to seeing you around. My thoughts and prayers are with you.

Darlene

[Rrae]

Welcome to NT!

I'm sorry about your son's illness. As you can see, there is so much support and understanding here. Also, you can find alot of good information at the top section of most of the forums, called the 'Sticky's'.

I hope you will begin to get some clear answers soon.
It's great to have you!

Caring,
Rae